I am 41, my husband is 56. We are both suffering from some GI problems.

For me, it started about a year ago with CNS issues, nerve pain, muscle twitching. The pain ran down my left leg and arm. I went through every test possible. At one point, the lab said I had a monclonial protien but it was a lab error. I did a rule out for MS (my mother has it). There are a number of problems with my C-spine, including disc problems with root instrusion.

Today, the twitches are mostly gone and so is the biting nerve pain in my left leg. For the last three months, I've had some really upsetting GI issues. Pain under my left rib, center and toward the flank that runs around my back. It feels like spasms in there. I bloat right after I eat. Sitting too long hurts. I feel swollen inside. The pain also runs from the sternum across the left side of my chest.

My husband has the EXACT same problems. He is worse off than I am. He and I hardly eat now.

I can't understand how this could happen to us and just be a random event. There is no way.

We eat a lot sushi. We eat mostly the same meals. I wonder if we have picked up some worms or a virus or something.

I am having colonscopy and an upper GI. I wonder if parasites would show up in those tests or should I ask the doctor about this.

I can not accept that this is some coincidence.

Parasites rarely show up in a colonoscopy,,, and of course if they are microscopic parasites they certainly will not. But getting a colonscopy is a good idea as it perhaps will give you a piece to the puzzle.

Eating sushi is not a good idea in my opinion.... raw sushi that is.

No matter what the diagnosis is you will be needed a complete cleanse..

there are many ways to to this and with all the nervous system symptoms that you have I would make it a major production and get your husband fully on board to participate as it is hard enough to do without support.

I would find a good naturpathic physician and consult with them and find out if they provide the Asyra assessment before you go... you will need that.
I would also look into MMS1 and MMS2 and you can learn all there is to know about it here: www.jimhumble.biz and we can give you some support if you should decide to do this.

You will also require a significant diet change that includes raw foods, juices, herbs, iodine supplements, vitamin c in large dosages (but not while doing mms) whey, and perhaps some IV nutrients from the Naturopath.

There may be other things but that can be determined when more is known.

You can learn a lot from this site if you stick with us for a while.

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I'm on board with it. We need to rule out anything major and then make a radical turn in the way we live our lives. We had a long talk about it tonight in fact. We have a 6-year-old with special needs and we have to be here for her. My husband is big into Chinese medicine and he has been seeing an accpuncturist for a year now. He also drinks a lot of her teas that combine mushrooms, giner and a lot of what looks like forest debris to me. : ) But, we for sure need to rule out anything major. I think I know a doc in the area that handles this sort of thing too.

I'm going to check our your links now.

When all this started for me, and it has been about two years, I thought I had been bitten by a tick and contract Lyme or something.

We had just had a tick infestation that happened as we redid our front gardens. I pulled one from my kid's head (embeded too)!. About a month before the tick thing, my child caught Swine flu and it rapidly went around our house, costing me more than a 1000 in meds to treat three of us. So, first comes the Swine Flu, a month later the ticks, which we sprayed for, then three months later I got sick and stayed sick for six months.

It was a hellish winter and I have numerous nervous system problems. I didn't know if came from Lyme or Levaquin or the steriods or all the other antibiotics but when summer started, it all stopped. I was really, really afraid, that much I can tell you. At one point, I had so much water in my lungs that I thought I was dying. Because I smoked for 24 years, I had my doc run a spiral CT lung scan and did some lungs tests - all clear. So, it was clearly my immune system. The chest cold was so bad, I lost all ability to smell and taste for 14 days and wasn't sure I'd ever recover it. Luckily, I got it back.

Anyway, I wasn't sure if I had Lyme or I had damaged my nervous system from that Levaquin or what. Even my primary doc was furious that I took that stuff on my own (found it in my mother's medicine cabinet). Damage done, right?

So, summer comes and I'm all better. I figured it was a freak thing, a bad winter. Then, on Nov. 4 last year, I wake up to what I can only explain as having someone throw water on my circuit board. I had twitches, thumps, strange nerve sensations, massive nerve pain. It felt like my nerves were stuck in a roundabout and looping over and over. I saw a neurologist, he did the EMG tests. All clear. I had a brain MRI. Nothing noted (well, the brainw was there). I did blood tests. At first, the nerve pain was in both my arms. My accpuncturists cured the left arm but not the right. I went to a Osteopath. He found significant issues with my neck, including root intrusion -- all on my right side yet the left side was what hurt the most. It did not make sense and he claimed it was radiating pain. So I see a new neurologist, I liked him, but he was stumped too. He did not think I had a MS, he wanted me to take a visual evoke test, which I did not do. I did the blood test, the lab made that error with the monoclonial protien, which put me in a total panic, and I just quit seeing doctors, figured I'd love with whatever I had to.

I did do steriod injections into my neck, which made the pain my left rib good on the second shot but really bad this time. It was my last one ever, promise. Now I have all these GI problems. I did have some of this stuff last year, I was told I had some infection in my intestines, I got meds and it went away. It's back and it's back now in a bad way.

I don't know what is going on but I've learned to live in pain and ill. I fake it and dont say anything, as much as I can keep my mouth shut I don't. I get dizzy and my vision is sometimes good, sometimes not. The stomach or GI issues, that is off the charts. I did not have this type of pain until I had the steriod shot in my neck. Like I said, I did have this before, nothing on this level, but it was checked out and no one found anything.

Now with my husband suffering like I am, I know this is way beyond something we can define or find easily. Seriously, I'm afraid again, and being afraid is why I just dumped all these doctors last year and tried to go on with life like nothing was wrong.

I hate feeling this way. I want to wake up and not think about this anymore. I want to know what the hell this is or I want it to go away. You have no idea how much I'd love to get up and go through my day without lying to everyone about how I am or fighting off pain. I have had to take small doses of Xanax to keep the nerve pain in check, and I take pain killers (in really small amounts) so that one of the two of us can function as a full-time parent.

I'm exhausted by this.

Does anyone know this doctor? Dr. Kalidas

Have you had your home checked for molds?

Since both of you are experiencing the same health problems, it would be a good idea to check your environment as dogwoman says. Not just molds, but your household cleaning stuff too.

Also, it would be cheap and easy to do a oral heavy metals detox. Something like this. https://www.iherb.com/Life-Enhancemen...ules/2741?at=0 That is only an example, one that I've done. There are others that you can find. While taking these metal detox formulas, you should ensure that your multivitamin has good minerals, or else get a separate mineral supplement. Many good minerals are metals, so you don't really want to detox them.

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- Jim
"Show me a sane man and I will cure him for you." �Carl Gustav Jung

I had a tapeworm which I believe I got from eating sushi. My doctor agreed.

Once your intestines are messed up you are susceptible to getting other conditions because part of your immune system resides there. Or it could be vice versa. The intestines, immune system, brain and nervous system all interact.

Whatever it is, I agree with Arrowind, see a Naturopath.

MMS will tell you if you have Lyme or not. It will make your symptoms worse by a factor of ten, with a one or two drop dose. When you kill it, it will produce a very pronounced Herxheimer reaction.

Dan

56 and 41: one happy hubby. Maybe you guys should do a vacation to a health spa for a week and see if the issues clear up. If not, take extremely seperate vacations and see if anything clears up.

I lost the board for a bit. I just found it again. I do need to follow this to the logical end. I read about MMS. I heard it's bleach? Is that correct? Also, I did not see where you could buy it due to the FDA warnings out. Can you tell me more? I did the Lyme test, it was negative. I think I'm going to test for both mold and radon. I know we had mold growing in the bathroom wall when we remodeled last month. But, our problems predate that. My started about two years ago. I am pretty beat up these days by all this, the mental strain alone is hard to handle. You don't realize what a blessing good health is until you do not have it. Ah, we just need to purge our systems and change whatever is causing this, which could be from many sources. I can easily do the mold and radon testing. I have a few tests left with the neuro and then I'm off the naturopath, which of course insurance does not cover.

But then I keep thinking about this Dali Lama quote:
The Dalai Lama, when asked what surprised him most about humanity, he said: �Man. Because he sacrifices his health in order to make money. Then he sacrifices money to recuperate his health. And then he is so anxious about the future that he does not enjoy the present; the result being that he does not live in the present or the future; he lives as if he is never going to die, and then dies having never really lived.�

I don't think we notice the difference anymore. I never really noticed.
Of course we have a 6-year-old so life is pretty routine around these parts.

Where can I get it?

Really? Ugh. You're kidding me. I keep thinking about that given the similarities in our symptoms and man we eat sushi like crazy. Of course we smoked for many, many years so maybe we both have cancer at the same time, a morbid thought that has occurred to me. I digress.

What cleanse did you do to remove that? How did you find out?

I'm game for trying them. Have you taken this, or anything like it, did you notice a diference in your health? Curious. What's your recommendation for good vitamins? I normally buy from Life Extension or Garden of Life.

Dan. Can you send me more information, please? I've been reading about this, it's interesting. It can't hurt unless you go too quickly. I am curious what your experience was with this, I know there's a big split in what people think about this. I'd try it.