Though it was, of course, what I had researched for about two yrs and persisted on behalf of my husband, it is waaaaaaaaaayyyyyyyyy more than I wanted to take on. Both the responsibility and the time.
Before, dialysis was 3days a wk for my husband w/me dropping him off, now it is 6days a wk 4plus hrs a day for BOTH OF US.
Before at least three days a wk someone else was caring for his health, now it is me seven days a wk.
Still, I try to remind myself that he doesn't have to be exposed to everything/everyone at the dialysis center...he doesn't have to get out and go during rain,shine,cold or HEAT, and when he isn't feeling well (often), he doesnt HAVE TO GO.
Also, and possibly most important, is that I remind myself that in the days/wks/months ahead as the cancers progress, I fear I would not be able to get him back and forth from dialysis (though thousands of people do it daily).
Sooooo, all in all, I am thankful.
As to date, his health continues to be up/DOWN, but still no real symptoms of cancer in lungs,(unless this very bad cough he has suddenly acquired is such), but we are already scheduled in a couple of wks, to go back into the bladder to ck for more tumors.
The urologist ask if anyone was addressing the lung cancer, and when we said no, he ask if we wanted him to set up testing during hospital stay.
Though I really like this said dr, I trust he could immediately sense that I was really opposed to it,as my body language and eye contact conveyed such,he immediately said we could just "think" about it.
I don't really know what my husband will decide and the choice is, of course, his,but we know it is there, and must surely be growing. As they have nothing to even offer us,and I have yet to find anyone else who can, I see no benefit to laden us down w/this.
We are "trying" to live day to day w/life's challenge.
In fact, the eternal optimist in me is working daily with the goal of packing us up w/our machine of only a few wks...loading it into our motor home and heading out of Dodge trying to beat the Tx heat (though we are a bit late)...yet another reason not to be slammed w/progression of the lung cancer.
My husband is very fragile and I fear that would really take him down.
Soooooooo, come mid July...mark your calenders and STAY OFF THE ROAD for a couple of days as we/I head north toward Baniff,Canada where the cool, gentle breezes blow. (also please feel free to send any loose change for the big ole fuel bill that diesel gas guzzler .)
Though it is my plan to be leaving in about four wks, I am in a panic to get us out of town before something else brings us down.
We were packed and ready for this very same trip two yrs ago when a yearly ck just before we were to leave,found the cancer in the last kidney, so just remembering it makes me want to sneak out of town in the middle of the night, AND I DON'T WANT NO MORE TESTING. I have come to suspecion that "testing causes cancer".
I know this is a health forum, but if anyone has any travel suggestions, I am waaayyy open.
We will be going to Yellowstone...Tetons...an extended "kick back" stay in Fishing Bridge,(none of which we have been to so feel free to jump in here and be my travel guide), then on up to Canada where we have traveled only slightly, with the hopes of then traveling back down the West Coast shore to Ca,and then cut back across toward Tx.traveling through the beautiful and COOL state of Co.
Yes, you may be reading about the LITTLE OLE LADY FROM AUSTIN,TX, and there is always the chance I will be having to call on one of you for bail coins:
So cross your fingers for us...say many prayers, and keep the many wonderful posts going/coming as I will be checking in to add to the power of knowledge I so need.
OOPS Sharon...I suddenly realized I just hijacked your thread. SORRY. I mainly just wanted to say "thanks", and REALLY didn't want to start new thread for that. SO please forgive---and follow that mold story!
I'm "thinking" you are right about the CCO, but could someone who really knows give us the thumbs up or the thumbs down.
(See Sharon...I can "stay on thread" when I need to :wink: