Originally Posted by RCannon
Liverock you have hit the nail squarely on the head with this link. I've read several books on this subject due to my wife and son having CF and Dr Myhill is right on. There is a doctor in New York, Dr Majid Ali, who also has done a lot of work in this area and treats CF. He has a book The Canary and CF, and several others on this subject but they are very wordy. Dr Myhill spells it out very clearly with no fluff, and her fees are low for the blood test evaluations I think. Everyone has some degree of fatigue and her mitochondria explanation applies to that too.
Thanks very much for this link which we will pursue further.
Unfortunately the last time I heard she was so snowed under with tests for UK patients that she was unable to accept requests for tests from overseas patients. That may have changed however so its best to check before ordering.
Heres an actual list of tests and a report she has given for a patient which you may find interesting (although it is quite long