Diagnosed about 4 years ago with fibromyalgia, possibly triggered by lower back surgery.
My Rheumatologist has me on several meds, one of which is an antibiotic because this fibromyalgia is possibly caused by a virus, or some bacteria that has caused an autoimmune disorder.
Now, in my research, and desperation to get rid of this ailment,i discovered a site on auto immune disorders,ie, fibromyalgia,lupus,chronic fatigue syndrome, sarcoidosis,etc, it is called the Marshall Protocol for inflammatory disorders, immune research study, so now the antibiotic i am taking is starting to make sense, but this Marshall Protocol calls for a combination of antiobiotics, but several years of treatment could prove to be a cure for many autoimmune disorders, so has anyone else heard of this, and if so, what is your thought, why dont our doctors tell of this Protocol, or do they not know? My family doc gave me the web site for fibro, i think i will print off the info for the protocol and show him.
Welcome to the forum diana1955. I can just say that a friend of mine, an elderly woman, found some relief from her fibro with Magnesium Malate (Source Naturals). Here's some older threads on the Marshall Protocol that may be helpful.
My Rheumatologist has me on several meds, one of which is an antibiotic because this fibromyalgia is possibly caused by a virus, or some bacteria that has caused an autoimmune disorder.
Fibromyalgia is caused by fungus, not by bacteria, and antibiotics won't kill fungus, since most antibiotics are made from mold, which is a fungus.
Taking antibiotics long term is dangerous, and deadly to the friendly gut bacteria, and once the good bacteria is killed off, yeast fungus takes over, and if left untreated will eventually kill the host..
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Let Food Be Your Medicine And Medicine Be Your Food.(Hippocrates)
My, but we all have our own theories on this: So here is mine! Fibromyalgia is a generic term used by MDs for an autoimmine disorder they do not understand.
If you want relief, lay of dairy products completely (except butter) and take fish oil, turmeric, ginger root and do not eat huge quantities of meat. Also, amn initial course of probiotics woule be helpful also.
I have tried everything for this "fibromyalgia", ? triggered by back surgery.
In my four years + of research on this matter, the "Marshalls Protocol" makes the most sense to me, if fibro is caused by a "fungus", then why are so many people being treated with this protocol and are greatly improved, if not cured.
Try researching Marshalls Protocol, it is a series of antibiotics, low Vit D, as this study states the "bug" thrives off the Vit D receptor, btw, my D level was 11, now taking Rx Vit D, 50,000 IU every 3 weeks, that explains to me why i feel worse.
now taking Rx Vit D, 50,000 IU every 3 weeks, that explains to me why i feel worse.
Indeed no human should take the plant form of vitamin d. The case against vitamin D2 explains how D2 speed up the use of Vitamin D so you end up worse than ever.
Change to D3 and you stand a chance of improvement.
But please don't base your experience of using the LEAST EFFECTIVE, LEAST SAFE, SHORTEST LASTING, MOST EXPENSIVE form of vitamin D as any reflection on how you would feel after using the NATURAL HUMAN FORM vitamin D3.
Yes but we do have to apply a modicum of common sense.
50,000iu/d2 over 21 days = 2 380iu daily.
Granted this is the plant form and not the human form and so generally does more harm than good, if it's absorbed, and used but assuming (erroneously) that is as good why would anyone with any common sense think that taking half the average humans daily requirement will correct a vitamin deficiency scenario.?
If you are in debt and have to get into financial surplus surely EVERYONE has sufficient common sense to understand that you have to earn more than you are spending daily to even start to accumulate sufficient savings to pay off the debt.
To begin to store vitamin D you have to be above 40ng/ml.
To have adequate stores requires 60ng/ml+
Roughly 6000iu/daily will be required maybe up to 10,000iu/d.
Taking less than half the daily average needs and expecting that to correct your deficit is as plain stupid as thinking that if you continue to spend twice what you earn you will save huge amounts of money.
It so contrary to the basic principles of common sense that it beggars belief that any doctor should think otherwise.
But in practice D2 speeds up the catabolism of VITAMIN D and sets people on an ever increasing spiral of escalating vitamin D consumption.
This should not be taken as being in any way contrary to saved1986's sensible suggestions though I think Heliobacter pylori is a likely candidate for FMS.
I would try treating for Lyme Disease before you come to the conclusion you have Fibromyalgia.
Try a natural antibiotic such as Cumanda or Samento from Nutramedix. You have a good chance at finding out that way. If you feel like you have been run over by a truck, when using it, you will be about 90% positive you have Lyme Disease.
Lyme often attacks after an injury or a surgical procedure such as you described.
You cannot go by a negative Lyme test. they simply are not accurate enough.
I would not use the Marshall Protocol unless it is your last resort.
Here is a bucket with a hole in it.
Go fetch some water.
If you make another new hole in the bucket every day the water will run out faster and you will be able to run faster and get more water.
If that's too complicated try this analogy.
If you have a hole in you pocket and you put money in, the larger the hole the more likely it is you will lose the money you put in the pocket.
If every day the hole gets bigger then the chances of ever saving any money gets smaller.
So we have a person with serious vitamin D deficiency.
She takes the form of vitamin D that speeds up the loss of vitamin D.
Will the deficiency get cured or become worse?
How can you correct vitamin D deficiency with the form of vitamin D that accelerates it's catabolism any more than you can fetch water with a bucket that has more holes every day or save money in pants pockets that have bigger holes every day.
Seriously consider heavy metals and toxins as one of the possible causes/contributors for your Fibromyalgia.
From what I understand regarding Marshall, he had an autoimmune disorder which did respond to lowering Vit D but it only applies to his disorder and he was trying to apply it to all autoimmune disorders.
Seriously consider heavy metals and toxins as one of the possible causes/contributors for your Fibromyalgia.
Indeed BUT remember Vitamin D acts to DETOXIFY the brain.
It raises the production of glutathione in the brain and so will low deficiency level vitamin D status how is the brain going to detoxify itself without first correction Vitamin D deficiency?
Most diseases are caused by pathogens. There are certainly many co-factors that also contribute.
I agree with your doctor that a pathogen is behind the disease, but finding that pathogen can be a daunting task.
When you do not know what pathogen is causing a problem, you basically have two choices. You either use a broad spectrum method of killing the unknown pathogen. MMS works for many pathogens, but not all of them. It has resolved many unknown conditions when nothing else would. I use this to directly kill pathogens that I cannot identify.
You could also use Ozone which is similar in that it is an oxidizing treatment.
The other method is to boost the immune system which often is dampened by the pathogen, or multiple pathogens. I use Low Dose Naltrexone for this very reason. I do not know all of the pathogens involved with my disease, but I know there are more than one. LDN lets my immune system decide what to get rid of, and it gives it the boost to do it.
Another low risk thing you can try is standardized Rhodiola Rosea. This has helped some with similar problems. It also increases immune response to a degree. If nothing else it can help with fatigue and depression related problems.
Any or all of these can help, and I have used all of them except Ozone.
I would use all of them before I would consider the Marshall Protocol.
i have been doing all of that plus for several years.
Thanks for the reply.
What you wrote was
Quote:
my D level was 11, now taking Rx Vit D, 50,000 IU every 3 weeks, that explains to me why i feel worse.
I've shown you the science explaining why it is that RX Vitamin D 50,000iu every 3 weeks inevitably speeds up the rate at which your body consumes vitamin D.
If instead of using the Rx form of Vitamin D2 ERGOCALCIFEROL you used the HUMAN form of the vitamin D3 cholecalciferol EACH month would see an INCREASE in 25(OH)D and eventually your levels would reach the NATURAL level HUMAN DNA evolved to work best with.
Topping up your vitamin D tank Dr Davis finds his patients generally take 10,000iu/daily of D3 in an oil gel cap form for 3 years before they reach 60~70ng/ml and he is able to reduce their daily intake to 8000iu.
Bear in mind fullbody non burning sun exposure naturally creates 10-20,000iu in a few minutes so Dr Davis is merely replacing what happens naturally with a form of vitamin D that is bio identical to the form human skin naturally creates.
It is misleading to other readers for you to claim you have been doing all that when you still have a vitamin D level that clearly indicates deficiency status. This is a NATURAL MEDICINE FORUM and NATURAL means replicating as near as possible the forms of micronutrients human bodies naturally synthesise.
Using Rx vitamin D2 is NOT NATURAL, humans don't NATURALLY make D2 and that is why some people, like you and the people in the research I've linked to, clearly can't handle it and don't respond to it.
Indeed BUT remember Vitamin D acts to DETOXIFY the brain.
It raises the production of glutathione in the brain and so will low deficiency level vitamin D status how is the brain going to detoxify itself without first correction Vitamin D deficiency?
I did not know that D raises glutathione!! How did I miss that, or did I forget? I have ME/CFS and was helped tremendously by Vitamin D. A good whey protein also raises glutathione.
Fibromyalgia
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