� #61
Old 02-14-2011, 12:06 PM
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no i have not beat it. i am doing better. i was in crazy pain. i have fatigue and lots of brain fog sore testicals urethra stomach sometime rectum.

i know there is a report out of korea i think about cipro and allicin working together. i would do that with massage drainage. you want the drainage. that is the point. like lets not go there for fun. it sucks but gets better. my prostate when i got sick was painful to the touch. some say if it feels good you are healthy. i am far from that. i do get relief after i do it. read about it and why although you probably know thats why you bought the tool. if you do it with taking the abx you should get new blood penetration in to the prostate.

i myself got severe after 8 weeks of cipro. so i dont know what to tell you. we are all different. i did azithromisin it worked when i had a mild libido and wbc count. i tried sulfa-trim (bactrim) thought it was working them nope.

today i am back to where i started with the fungal idea. there was no way of me getting an std from a woman. i may have something else. what i am doing is the anti candida diet, mms, massage, all the herbal anti fungals, virgin coconut oil, i ran out of allicin so i am eating raw garlic, using the advice of others and not stressing, visualizing good thoughts, trying to meditate and getting rest. i feel it is working. i know i still have an infection. i am still in pain.

from what i have read lately and some of the posts that have come in i believe we could have fungus. i had a poor diet high stress alcohol intake bread pasta pizza potatos fried or plain. i had no bacteria found ever. so i have read no matter what men find relief in the anti candida diet no matter what. i know the mms is powerful. i enjoy taking it. i take it with silver water now too and am hoping for a synergetic effect.

so in answer cipro is a dangerous drug. i took it because the doctor told me to and lets face it we were talking about nut pain and hard ons. i said "ok doc" i was in perfect health at the time. i ended up with sore joints and a severe case of CP that has lasted almost 4 months. my intestines took a beating and my gut is far from the same. if i knew i had a bacteria infection i would have taken it but i have no proof i have ever had. the doctors all screwed me over. make sure you get test done before anyone jumps on board the abx train it could be a waste and cause more problems.

in the mean time try the fungal root it costs not much and is good for all our health and it may work or give relief. if it works for anybody please post to help others.

if anybody wants mms i have found a nice lady in canada christine at www.sodiumchloritepowder.com 1-403-652-3647

keep the fight and i hope to hear of more fungal cases and recoveries. i hope the abx work for some. remember massage gives relief hot bath massage ejaculate urinate is what i was told. massage works better after time.

best of luck to all
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� #62
Old 02-14-2011, 09:17 PM
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Hey helpmyprostate,

Im sorry to hear your story, I have had a similar experience with doctors.. they put me on cipro for 4 weeks.. not 8 though, thats rough.. but 4 weeks was enough to seriously mess up my digestive system + cause some odd symptoms.

I dont reccomend anyone take cipro or any broad spectrum antibiotic unless a doctor can give you proof you have an infection. I experienced some stiff muscles/joints after but only for a short time.. but ive had some odd stuff happen which may or may not have been by the cipro.. muscle twitching, digestive problems, dryness etc.

Its probably different for each of us.. fungal infection is possible.. but should go away when you eat right/sleep right/live right.. these things take advantage when our bodies are in the right condition, if the conidtions are not right they will not thrive.
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� #63
Old 02-15-2011, 10:32 AM
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Quote:
Originally Posted by helpmyprostate View Post
no i have not beat it. i am doing better. i was in crazy pain. i have fatigue and lots of brain fog sore testicals urethra stomach sometime rectum.

i know there is a report out of korea i think about cipro and allicin working together. i would do that with massage drainage. you want the drainage. that is the point. like lets not go there for fun. it sucks but gets better. my prostate when i got sick was painful to the touch. some say if it feels good you are healthy. i am far from that. i do get relief after i do it. read about it and why although you probably know thats why you bought the tool. if you do it with taking the abx you should get new blood penetration in to the prostate.
snip...
My friend I am sorry if I upset you I just thought I would ask about cipro.
Mine deffo an std from a woman and it is one that a woman may carry with no effect to her but will pass on.Some men can carry these cells with no symptoms and others can not.
I have a red rash on the inside of my leg where my penis sits from the discharge I get so I am pretty sure I stll have an infection.
Helpmyprostate I hope you get well my friend
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� #64
Old 02-16-2011, 07:37 PM
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I agree with helpmy about the anti candida diet. It is a good diet to help your body heal wether or not you have a fungal infection. I am going to try a raw, organic , fresh veggie fast as soon as my juicer gets here. I am going to do it for at least two weeks and see how it is going from there. I have also been doing the h2o2 protocol for the last few days and it seems to have been improving my symptoms. I hate saying that because, I am sure just like most of you, I have said that before and ended up back in the same place.
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� #65
Old 02-19-2011, 03:21 AM
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Folks just an update on things.I am doing the massage every day for five minutes along with Clarithromycin and about 10 allicin a day.
I have to say Today I feel the best I have for about 10 years.Its not gone we all Know where we stand with that but I feel better than what I did a month ago I was very bad.I have only been doing the massage with Clarithromycin and allicin for 5 days my course is for abs is for two weeks.
Last night is the the first night I slept through with out needing to get up to the toilet 5 or 6 times in years.
I am not cured far from it but I am better .
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� #66
Old 04-29-2011, 06:06 PM
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Hello guys, I just ran into this forum. I've been dealing with this for about 5 months already. Was told by doc I have prostatitis. Currently have had 12 days of Cipro, 12 days of Levaquin and continuing. I have the same exact symptoms as Jofus. Antibiotics have toned down the situation, however I don't think they are going to cure me. I also had rash in the genital folds, however after Urologist told me to only shower with water and apply lamisil to the area, the rash seems to be going away slowly. Rash is about 92% gone. Scrotum burning has diminished and receeded mostly to the perineum area.

So far, what do you guys recommend? I have about 18 more days to go with Levaquin. I haven't hand any side effects yet, so I think I'm going to continue. I've read that in order for antibiotics to treat this problem, they have to be given for approximately 3 months. I just started the broccoli protocol as well. Anybody, have any useful information on this?

I'd really appreciate any info on what to do. Thanks guys.
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� #67
Old 04-29-2011, 08:52 PM
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Lovelife how did the Clarithromycin work out for you?
echosixnoble tough to say what you should do. Fix your diet and lifestyle and get your body in the best shape possible, then start trying the different types of treatment untill you find something that works. Many of us have had improvment of symptoms, but I don't think any of us have found a cure yet.
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� #68
Old 04-29-2011, 09:13 PM
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Quote:
Originally Posted by jofus View Post
Lovelife how did the Clarithromycin work out for you?
echosixnoble tough to say what you should do. Fix your diet and lifestyle and get your body in the best shape possible, then start trying the different types of treatment untill you find something that works. Many of us have had improvment of symptoms, but I don't think any of us have found a cure yet.
Thanks for the reply Jofus. Hey are you still having problems with your mouth. I also started getting a white tongue and dry mouth, but I started using lysterine in the morning and at night after brushing and its completely gone. Since I haven't gotten any side effects yet with the antibiotics, I'm going to see if I can tolerate them for the total of 3 months if I'm not cured before. So far its been a total of 25 days. Hey Jofus or any one else, do your scrotums sag? I haven't seen this as a symptom for prostatitis from anyone yet. I have this problem still although burning is starting to go away. Anyways, I'll try to keep you guys posted on the antibiotics.
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� #69
Old 04-30-2011, 12:53 PM
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Yes saggy, red, heavy, uncomfortable feeling scrotum. I believe it is caused by a hydrocele wich is an accumulation of fluid in the inbetween layers of your sac. It can be caused by infection, truama or other things in that happen in the general area. I am having improvement on mine but its a slow process. It can take a while for your body to get rid of the fluid build up after the cause has been addressed even when working optimaly. Something that can help is yoga, and there are even certain poses especaily for hydrocele. If you google yoga and hydrocele you should find some.

I personaly would not take antiboitics again, I don't beleive they are the answer to my problem and I think the only reason some people have success with long term treatments is because the body has healed it self.

I have had improvement with the tounge coating but I still have small amount left. I have been using mms and iodine protocols for the last few weeks. My symptoms all around seem to be improving but slowly. I have now slept through the night several days in a row with out getting up to unirinate wich is a good sign. The pelvic and back pains have become less intense and frequent. I have also been doing yoga and limited ejacluations to 1-2 times per week. I eat mostly organic, juice fresh veggie juice daily, cut out a lot of sugar, and wheat. I drink a half tablespoon of MSM powder mixed in water every evening, and also have been taking a scoop of modified citrius pectin in water everyday. I drink only water, not coffee pop or juice besides the veggie juice.

The mouth is a window in to the body and the listerine may mask the symptoms but it definitely well not help your body repair. I have cut out flouride based toothpastes and have started oil pulling with coconut oil, it seems to be great for oral health as well as overall health, google it. I would try to find natural methods of dealing with things and you will find that they tend to compilment each other a lot better than drugs and chemicals.

Right now my digestion is messed up, it was before this started but I don't think the antibiotics helped either. I have a feeling my gut is the start of all this trouble so right now I am trying to heal that part. I have read that the gut is the first line of defense and is the start of most disease or problems in the body. It even has a big influence on our emotions and mind.

I biggest piece of advice would be to read. There is lots of info on the net but try not to take it all as the truth. Be weary of websites that are selling products. There is surely enough people out there that truly mean well and are doing great research. Also try to keep things simple, it is easy to read all this info and get overwhelmed and starting taking 100 supplements a day and be fearful that everything is bad for you. Our bodys are magnificent machines and the defualt is for them to be healthy. Give them what they need, and limit what they don't like and they well repair and rebuild.

I will end here as this post is becoming very long.
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� #70
Old 05-02-2011, 09:23 AM
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Quote:
Originally Posted by jofus View Post
Lovelife how did the Clarithromycin work out for you?
echosixnoble tough to say what you should do. Fix your diet and lifestyle and get your body in the best shape possible, then start trying the different types of treatment untill you find something that works. Many of us have had improvment of symptoms, but I don't think any of us have found a cure yet.
Hi Jofus
Only a slightly better once the clarithromycin ran out things got worse.Still doing the massage every day and ejcaculation and taking doxy but if no massage ejac things start going bad within 24 hrs.
Just waiting for mms to give that a go.I honestly dont think there is a cure for me except for removal of the prostate.
I hope people are getting some relief from this
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� #71
Old 05-02-2011, 01:32 PM
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Shame that so many are not having much success. I want to write a big post soon as I can to explain a few things. I've always noticed a huge symptom relief while taking antibiotics. The progress tends to be up and down though, with flare ups 'during treatment' but after each short flare, the symptoms are less severe, and each flare up seems to be shorter. I think it's just the cycle of infection, how it works. Lots of chronic infections are caused by biofilms which are tough to get at. Chronic sinusitis is also difficult problem to deal with and tends to keep coming back. In fact, many people that undergo surgery for sinusitis are found to have biofilm related infections. No wonder why there are so many treatments that fail. I think that by trying to figure out how to make the infection susceptible to antibiotics and the immune syste, over time, you can cure the infection. Unfortunately it's not a staright forward process and during treatment there would be expected flare ups. If you think about it like pealing away each layer. You get deeper into the infection. Biofilms go through a process, they dsiperse and release millions of or billion of bacteria which then activate the immune system. Anything that degrades the biofilm, like compounds such as allicin, will activate the immune system and almost certainly cause flare ups. Treatments with these type of compounds would take months to achieve benefit, and you would have to go through flare ups to heal. I think it's just part oft he process.
If there flare ups during treatment are short lived (1-5 days or so) then this is probably a good thing rather than treatment failure. It just shows taht your immune system is now finding the infection and dealing with it. When biofilms are present and causing low level inflammation there will be low level symptoms. When a biofilm breaks apart, disperses to form new infection of new tissue, this is what a flare up is.

To have any chance of clearing the infection you need to:

A) find an antibiotic that you KNOW works for you. For me the signs of an antibiotic was working were rapid, within 2 days normally and I would experience: elimniation of burning urination, less pain, less frequency, better ejaculation, stronger urine stream. Doxycycline and trimethoprim both worked for me. I have a good idea on this also, which might have worked for me. I feel lucky that I always responded well to antibiotics.

B) find compounds that will work together with the antibitoic. In models of prostatitis in rats they have found that various compounds can help remove infection better. Green tea catechins, Garlic or allicin, lycopene. Others that you can take WITH antibiotics like trimethoprim and doxycycline are Quercetin, Curcumin, Saw palmetto, Bromelain (enhances quercetin and doxycycline), minocycline has a little more success in prostatitis though. Lactoferrin, beta glucan, Zinc, ginger, broccoli sprouts, and other things will act together with the antibitoic.

If you can use a combination of antibiotics it might be worth it. For me, doxy an trimethoprim worked. My idea was to use the doxy first to clear infection and get the prostate functioning more normally. In response to the infection the pH of the prostate changes, and then the normally good penetration of trimethoprim doesn't occur. By calming things down and getting rid of an active inflammation and infection you could then could switch to trmiethoprim as it is usually a better antibiotic for dealing with prostatitis. Already weakening any infection, and by the end of 3 months being asymptomatic or considerably better, you would have more success with trimethoprim if the infection is sensitive to this antibiotic. Which in my case, it was. So basically when the infection is mostly resolved, and the prostate is not inflamed, the pH will return to normal and higher concentrations of trimethoprim will be reached within the prostate, killing any resistant organisms that would require a higher concentration of the antibiotic. From my research, it seems that long term treatment with chronic bacterial prostatitis doesn't result in oganisms that are resistant. This is proven from cultures taken after men recieving antibiotics for infection and failing therapy.

I believe that inflammation takes a long time to settle in the prostate, it is slow, but the nature of the disease is that progress will be up and down. this is to be expected, even when taking an antibiotic, allicin or any other compound that affects the disease.

This isn't the big post I want to make... I have a lot to share, lots of ideas, the last thing I will say for tonight is don't give up! there is a study on chronic prostatitis, unfortunately they didn't give the other group a placebo... but it showed that men who took antibiotics with other compounds like I mentioned above had a 80%+ CURE, even after 6 months
Quote:
Serenoa repens associated with Urtica dioica (ProstaMEV) and curcumin and quercitin (FlogMEV) extracts are able to improve the efficacy of prulifloxacin in bacterial prostatitis patients: results from a prospective randomised study.


Source Cai T, Mazzoli S, Bechi A, Addonisio P, Mondaini N, Pagliai RC, Bartoletti R.

Department of Urology, University of Florence, via dell'Antella 58, 50011 Florence, Italy.

Abstract

We report the results of a prospective randomised study to evaluate the therapeutic effect of Serenoa repens, Urtica dioica (ProstaMEV), quercitin and curcumin (FlogMEV) extracts associated with prulifloxacin in patients affected by chronic bacterial prostatitis (CBP). From a whole population of 284 patients, 143 patients affected by CBP [National Institutes of Health (NIH) class II prostatitis] were enrolled. All patients received prulifloxacin 600 mg daily for 14 days, in accordance with antibiogram results. Patients were split into two groups: Group A received prulifloxacin associated with ProstaMEV and FlogMEV; Group B received only antibiotic therapy. Microbiological and clinical efficacies were tested by two follow-up visits at 1 month and 6 months, respectively. Quality of life (QoL) was measured using the NIH Chronic Prostatitis Symptom Index (CPSI) and International Prostatic Symptom Score (IPSS) questionnaires. Group A comprised 106 patients and Group B comprised 37 patients. One month after treatment, 89.6% of patients who had received prulifloxacin associated with ProstaMEV and FlogMEV did not report any symptoms related to CBP, whilst only 27% of patients who received antibiotic therapy alone were recurrence-free (P < 0.0001). Significant differences were found between groups in terms of symptoms and QoL (P < 0.0001 for both). Six months after treatment, no patients in Group A had recurrence of disease whilst two patients in Group B did. Questionnaire results demonstrated statistically significant differences between groups (all P < 0.001). The association of S. repens, U. dioica (ProstaMEV), quercitin and curcumin (FlogMEV) extracts is able to improve the clinical efficacy of prulifloxacin in patients affected by CBP.
Flare ups during treatment, aren't always a bad thing. To remove an infection, you have to go through clearing the infection, that requires an immune response, and that creates inflammation.

Take care everyone!!! I'll be writing again soon. A more detailed post with lots of references.
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� #72
Old 05-02-2011, 01:34 PM
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that was all off the top of my head. A much better post to come! Keep a look out

A tip: Try something like D mannose. If you find that it removes your bladder irritation, helps with frequent urination, takes away burning urination, like it did for me (always), then you probably do have an infection and it would be caused by E coli. Unfortunately this test wouldn'twork for other bacteria.... Cranberry juice also worked but was less effective when having an active bladder infection for me.
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� #73
Old 05-02-2011, 01:52 PM
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hey is this the iwillbecured from the old prostatitis site that was shut down? that was a great post.
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� #74
Old 05-02-2011, 01:58 PM
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Yeah it's me. Finally found you all.
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Old 05-02-2011, 02:10 PM
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I wrote this before but I want to share it here./

Dispersal of biofilms and prostatitis flare ups

I wonder why more effort isn't put into dealing with the biofilms in prostatitis. Studies show that the reason for chronic infections is most often because of bacteria form biofilms and bacteria can be upto 1000x more resistant to attack from the immune system or antibiotics. Bacteria isolated from Chronic Bacterial Prostatitis sufferers seem to be medium to strong producers of biofilms. [1] . There are many compounds under investigation right now known to disperse biofilms, in fact Allicin is able to do this, n-acytel cystein also. The reason for the chronic cycles of prostatitis where symptoms flare, settle down, flare etc etc... could be because of disruption of dispersal of biofilms allowing free planktonic bacteria form other colonies and thus cause activation of the immune system and further destruction of prostate tisuse. Antibiotics quickly clean up the bacteria that are easiest to kill, which is why there is an initial improvement with antibiotics, but some times patients will relapse with symptoms during treatment or after treatment has ended. Is it not possible that flare ups during treatment of prostatitis does not always indicate treatment failure, but the disruption of biofilms in which causes activation of the immune system against the infection. Thus treatments like allicin (that I think might work well against biofilm infections) could cause flare ups during treatment and rather than a sign that it's not working, it could be a sign it's allowing your immune system to deal with the problem.



During treatments of prostatitis with antibiotics I had noticed these cyclic flare ups of symptoms followed by relief, and each time the flare up being less severe. It is quite possible that using alternative treatments like allicin which is able to both kill bacteria and allow the immune system to attack the bacteria within the biofilm might allow the antibiotics to work better, but used by itself or with antibiotic could cause temporary worsening of infection fromt he disruption and release of billions of bacteria. The last time I was taking Allicin with antibiotics I had taken doxycycline, but started to use allicin during treatment also. After finishing doxy I started a short course of trimethoprim along with allicin and quercetin. It was mainly during this time I felt cured. Dealing with the inflammation and normalising the pH of the prostate might help more trimethoprim diffuse into the prostate allowing higher concentrations and to kill any persistent bacteria. After treatment I noticed weird sensations, like itching, or tingling sensations in the prostate and penis. It's like the sensation when you have a cut and it's healing. Also with resolution of the usual symptoms; fever, frequent urination, pain, burning and so on.

There are many natural compounds that I've researched that are able to prevent biofilms from forming, but have little if no effect on mature biofilms. One of them being Bovine Lactoferrin. Taking lactoferrin (and possibly others, which I don't have time to go into right now) could enhance treatment and prevent treatment failure by stopping bacteria from forming new biofilms within the prostate. Actually, if you do a pubmed search on biofilms you'll find that in prostatitis lactoferrin levels are elevated. What's more, there is also evidence in-vivo in humans and animals of the effect human and bovine lactoferrin has on immunity and prevention of viral, bacterial and fungal infections.

The problem with using natural compounds from plants is the bioavailability and half-life in humans. In mice they might work, but in humans application of these compounds might not apply. This I am aware of already. Local injection of NAC, Allicin into the prostate, I don't know if this is feasable approach to dealing with prostatitis when used in combination with antibiotics. Allicin injections have been used in animal models of infection though. I don't understand why these aren't being investigated by researchers. Especially combining NAC with antibitoics. Oral NAC won't reach concentrations needed though.

I have been hearing about the development of synthetic compounds that are able to disperse or prevent biofilm formation, disrupt quorum sensing which in turn disrupts communication and the integrity of biofilms, but so far have no heard of these are being used right now in clinical studies or available on the market.

People need to start thinking outside the box and develop new novel ways to deal with bacteria. I truly believe that bacteria are responsible for the majority of prostatitis in humans. In fact there is a study showing how the toxins from bacteria involved in prostatitis is able to cause pelvic muscle dysfunction. I think that dealing with the muscle issue that comes with prostatitis is not dealing with the core issue at all. Although it might be the only factor in some people, I don't think that is the case for the majority. There will always be symptoms with chronic prostatitis at a low level (sometimes not at all if the bacteria go into a dormant state) and that is why fixes like the stanford protocol is not the complete answer. It just solves one part of the problem.


[1] Mazzoli S. Biofilms in chronic bacterial prostatitis (NIH-II) and in prostatic calcifications.
PMID: 20298500
[2] Biofilms and infections of the upper respiratory tract. (NAC)
PMID: 20707288
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