Hi people sorry about not coming back on here for a while and sorry for not answering you mess Harry.
I am still the same I have stopped taking everything and it has not made a blind bit of difference.
I still get the full feeling if I dont ejaculate every 24 hours or so and thats about it.
I have had some information back from my family in Italy about prostate injections and it as all negative and a drain on your pocket.
So in October I am going to start looking to have it removed.There is nothing else I can do and I have tried everything and I have been disciplined in what ever I have tried and it did nothing to be honest over the last 18 months.
Take care people and I will be back but not as often as I used to..
LOVELIFE ADVICE:
I started to say No need in going Italy. You're not from America are you ?
If you are in America a doctor in california does prostate injections of levaquin, and he doesn't charge out the @$$, he charges $1400. His name is Dr Bahn. Also you better be careful on how and who removes your prostate, most urologists will rip you apart getting it out and you will suffer from incontinence (urinating all over yourself constantly) as well as never getting an erection ever again. The average urologist will cut right through all your sexual nerves to get the prostate out. And in the end you will end up worse than when you went in.
Dr krongrad of Florida uses robots, which can do precise cuts leaving all your sexual nerves intact. 90% of his patients have erectile function back within a year. If they don't use a robot to take your prostate out, and the surgeon does it by hand you're in trouble big time.
something I recently found out, a doctor can put a small camera in you and look through your entire prostate including right up inside the ejaculatory ducts to see if anything is wrong. So why don't they, I think most members on this board can vouch that doctors in general don't take prostatitis seriously, for the simple fact it's not going to kill you like a prostate cancer would. I could pull a muscle in my pinky finger and it would be taken more serious by a doctor than prostatitis would, it sucks but that's the truth.
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My names not harry crumb. I just like the movie !!
these are the meds I'm on now Amoxicillin 500mg Clarithromycin 500mg Omeprazole 20 mg I had ten days.. five days left..I really hope when the five days are gone so will be the H.pylori and the Gastritis ..Oh I I'm loading up on Probiotics
So guys I was doing some research around and found several videos off of TED site. I found two different technologies that are currently being developed here in Southern California, "retrovaccinology" and "altermune". Both are target specific. They can destroy antibiotic resistant pathogens, and even viruses. They are the future of medicine and thought to be the replacement antibiotics. They have been doing testing for the past 10 years, and have shown very promising results. They are even thought to be able to cure Aids and cancer patients, etc. Just wanted to give you guys hope, there are new avenues coming out.
Does anybody have any good news ? I'm not talking about you felt okay the last 2 or 3 days either, I mean anybody cured? or better for the last 2 or 3 weeks or longer. Or we all still suffering ? I don't think very many prostate sufferers use this forum anymore, seems to just be pro herbal guys. lovelife has tried every herbal supplement under the sun and it has not worked for him, I would eat a dog turd at this point if it would cure me.but don't like the idea of going and buying a bunch of herbal stuff that won't work. If someone can offer me evidence that some kind of supplement works I would order it today. but again I need evidence of a prostatitis sufferer taking the supplement and improving .......
Ok this guy is claiming he is 98% of his prostatitis is gone as of the times of his writings.
HE States
"" At the time all of this was occurring I was reading a book on vitamin c by Linus Pauling where he suggested taking mega doses of vitamin c to cure infection. I thought it was a long shot. I was already taking about 3 to 4 thousand milligrams per day for about 6 weeks but he was suggesting 10 to 18 or even more grams per day. He stated that it was perfectly safe to do so and that one could even take 100 grams per day and not have any adverse affects other than gas and diarrhea, so I began to increase my dosage. At first I started taking about 8 grams then 10 then 14 then worked up to 18 grams a day. All of this being within a week time frame. Guess what happened? My symptoms began to subside. My prostatitis is now 98% gone." users name is andrew7719"
link below if anybody wants to read his story.
There have been reports of IV vitamin see up in the 100 gram mark keeping cancer at bay for men and women with actual cancer, I am not aware of any cancer being cured, only kept at bay meaning the cancer was no longer growing while patients were taking the mega dose of vitamin c.
Just go on youtube and type in vitamin c mega dose
and then scroll through the news videos and watch....
anyways, if anyone wants to try giant mega doses of vitamin c to see if it helps you, you can give it a go.
I have been following the Canadida diet from this site https://www.healingnaturallybybee.com/index.php . It is actually a general healing plan that will heal all ailments of the body. It is a specific diet and vitamin regime. The website explains it all, why the drugs you are taking will never work, and why this has happened to us. This is the 6th month of I have been on this program, and I have had marked improvement. My unrination is average 400ml - 500ml. I have even been able to hold it up to 800ml on mutiple occasions. Before my need to urinate was around 200-250ml. Week by week the discomfort in that area is now getting better and better. Somedays it almost feels normal now. I don't have the burning after urination. My ejaculations or better, although I feel limiting them while healing is important. The one thing to note is it took a few months on this plan before I noticed any improvments. Then you well have a lot of bad days, especially at the begining. Alot of healing reactions, fluey like feelings, aches, you name it. She also runs a great email group with tons of people on the diet. Mostly people trying to cure candida, but its all caused by the same thing.
Lovelife, dont get your prostate removed. I have heard tons of storys where people say it don't even get rid of the symptoms, but you also have bad side effects from the surgery as well.
Try this healing plan I'm on first. Give it a shot, don't cheat and stick with it for at least 6 months and see if you don't start improving. It feels so good just knowing that something is working, and you have the hope that one day you will feel normal again, actually better than normal.
Good for you jofus. A lot of weeding to find what helps and works. At times we all wanted to rip out our own prostates. I believe candida can effect our nervous system causing tightening of muscles. Then antibiotic over dosing completely puts us in a terrible state. So many people say antibiotics make this worse or after wards it is worse.
I like you had tongue problems after the antibiotics. One thing I had before prostatitis was very loose stools and severe ibs. I too am better in all ways.
I would look into naet treatment. This is a way of dealing with your allergies. Ie yeast. For an odd reason I did a parasite protocol (pharma, twice) and my skin candida got better and so did my stool. You can never beat candida if you have intestinal parasites. I don't know where I got them or saw anything but that is the truth. I am better and that is all I care.
Now I do stretches and relaxation techniques. Stress is an issue for us and abdominals are tight with stress.
Lastly one thing I did was put pressure on my abs and practice catching my breath or exhaling out to the last bit. For some reason for me it was like being underwater. When I was caught up the muscles relaxed. Then normally I would have or want a bowel movement.
Your are right about the stress, breathing and stretching. See stress can mess up our bodies ability to remove toxins as well. But its not about killing the candida, or bacteria, or what ever that you think is causing the problem. The problem is causing the candida or whatever. The problem is an acumulation of toxins in the body, and lack of proper nutrients including vitamins, minerals, good fats and protien. This creates problems on a cellular level. Check out the website to understand more, its really a different way of looking at the problem, but it makes complete sense.
I have only one question - do you think that semen analysis is enough to confirm prostatitis (bacterial or abacterial) ?
I have never gone to a urologist, because i fear the per rectum experience (is it painful ??).
Besides, i heard a lot of views that semen analisis if negative is enough to conclude nonbacterial prostatitis (as I do have symptoms).
So, do you think urology exam is esential (doing the post massage urine test ?) and is it painful ?
I have only one question - do you think that semen analysis is enough to confirm prostatitis (bacterial or abacterial) ?
I have never gone to a urologist, because i fear the per rectum experience (is it painful ??).
Besides, i heard a lot of views that semen analisis if negative is enough to conclude nonbacterial prostatitis (as I do have symptoms).
So, do you think urology exam is esential (doing the post massage urine test ?) and is it painful ?
Thanks.
Johnny pain is a part of life, no need to be afraid of the rectal exam. If you wanna experience pain let somebody stick something up your pee hole that would be more scary then a finger up the butt by the doctor. Those exams
do hurt a little but it's not so bad that you will cry or be hurting hours later. It's more of a mental thing, last thing a man wants is for another man to stick his finger up his butt, but it must be done for this disease in hoeps of locating the problem and fixing it.
Post massage urine test is complete garbage. They usually don't work, the urologist will massage the prostate and then have you pee in a dixie cup hoping that a tiny bit of prostate fluid will wash out of the penis. I'm from arkansas, prostatitis treatment in Arkansas is almost non-existent compared to the big cities because all I am dealing with are doctors who graduated from the local community college who have little to no real expertise in the field of medicine. with that being said, heed my mistakes, a man who learns from his mistakes becomes a wise man, only a fool would make the same mistake over and over again.
Post massage urine doesn't work very well. The problem lays in the fact that once again the urologist is going to look at the contents of the bladder. my rule of thumb is this " Unless I have a bladder infection, they are not getting one drop of urine from me"
The correct way to do a prostate massage is to massage prostate, next doctor collects prostate fluid from end of penis and puts the sample on a slide looking for a certain amount of white blood cells, I think it's 5 or more. next the sample of prostate fluid is sent to the lab to be cultured (grown) for bacteria. The urine will mask the white blood cells and bacteria from the fluid which will result in a failed test, showing that you are infection free.
The first urologist I seen looked at fluid and told me I had an infection from looking at fluid. he then told me to pee in a cup. he told me weeks later that he believed my prostate fluid would have grown bacteria and that he wished he had not made me do the post massage urine test because some times the urine will mask the bacteria from the prostate fluid. I was shocked that he actually told me this.
If you are gonna do the test do it right. which means no urinating in cups unless you have a bladder infection.
Prostate massage - a procedure in which prostate fluid is collected for examination. This procedure is usually performed during a digital rectal examination (DRE) and involves the physician "stripping" the prostate gland to drain fluid into the urethra. This fluid is then examined under a microscope to detect the presence of inflammation and/or infection.
by the way, everybody prostatitis is not caused by the exact same thing. there are many different causes
from bacteria, parasites, fungus, viruses, inflammation, pelvic floor problems, hernia, chemicals, nerve trauma, etc..... I think one big possibility could be irritant or inflammation, cystitis is a constant inflammation of the bladder where a person has a very inflamed bladder for no reason at all.I once had cystitis for about a year after fighting an off and on again e coli bladder infection in my early 20s. it took about 1 year for the inflammation to completely stop. anyways a link for you below https://cda.uams.edu/Taxonomy/RelatedDocuments.aspx?ContentTypeId=85&ContentId=P 08132
In the end this report says that " Chronic bacterial prostatitis
Although fairly uncommon, chronic bacterial prostatitis is a recurrent infection of the prostate gland that is difficult to treat. "
So bacterial prostatitis turns out to be a very rare disease - and in almost 95 % of cases it is the NON bacterial (Chronic pelvic pain). And given semen is clear, what is the reason to go and do this painful examination ?
At the end of the day we all have the non bacterial prostatitis - as I presume.
Thank you for your answer Harry Crumb.
And given semen is clear, what is the reason to go and do this painful examination ?
Johnny do not be afraid of the rectal exam. I had three of them and I can ensure you it does not hurt. A little uncomfortable yes because you are not used having things inserted in your butt but painful no. Just think that gays do this all the time, it does not seem to hurt them haha. Harry is right having things inserted in your urethra is far more painful. I had a urethra swab when my prostatitis started and I thought I was going to cry from the pain. This is why cystoscopy is done under anesthesia sometimes. Rectal examination can be useful because assuming your are free of infection, it can help to confirm whether the prostate is the problem or not. If the gland is infected or inflamed it will most likely be swollen and tender to touch. Uros have touched hundreds or thousands of prostate glands in their lives so most of them should know immediately if the prostate feels ok. If a couple of uros tell you that it feels normal to the touch and if you have no proof of infection you know that the prostate is not the main problem and you can start looking elsewhere.
Guys I am doing better and better, my last relapse being back in January. The improvement is extremely slow but steady. If I did not have a job that puts stress in this area and slows down healing, I think I would be recovered already. I am completely free of urinary and ejaculation problems, no pain whatsoever and libido as good as ever if not even better than before. My only current symptoms are occasional minor burning felt at the tip of urethra and numbness in a localized area in the right upper abdominal area. The symptoms are very mild and have been like that for a very long time already. I have been carefully observing those symptoms and have reached the conclusion that these are pure neuropathic symptoms. Guys do yourself a favor and start searching the terms peripheral neuropathy, allodynia and hyperalgesia. The bottom line is that even if you get rid of the bacteria and fixed your pelvic muscles or whatever caused prostatitis, it is very likely that you will be dealing for a very long time with the last stage of this complex disorder which is nerve problems. Allodynia and Hyperalgesia are big and classic problems that occur in chronic conditions like CPPS. Basically allodynia is a condition in which you feel pain when responding in completely normal stimuli (a normal person would not feel pain) and hyperalgesia is the condition in which your pain symptoms are magnified beyond what the level of pain should be. During CPPS the nerves are damaged chronically, have learned to the damage and continue to emit pain signals even when the problem is solved. Nerves are notorious of healing very slowly. Allodynia and hyperalgesia typically take months or years to resolve.
How do I know I have that? I noticed that tight things like pants and a tight belt while at work irritate the abdominal area as they rub against the skin and the discomfort feels more pronounced. As soon as I get home and throw off my clothes and stay with my boxer I feel great. I also try to run smoothly my finger over my abdominal area like a feather and I just feel an oversensitization of the nerves. Allodynia and peripheral neuropathy are very often felt at the skin.
My treatment the last few months has been daily meditation and overall relaxation. Sometimes I do stretching. I consider relaxation and an overall lifestyle change to correct the wrong practices of the past (stress, tension) crucial to start healing. I take no drugs at all just some supplements like Magnesium for the muscles, complex B for the nerves, Vit C and a few prostate supplements like Zinc and pumpkin seed oil to decrease the odds of dealing with prostate problems again in the future.
Despite the scary stories on the net, many people get cured from this and my own progress has shown me that we should never lose hope. People who get cured do not seem to come back on the net and share their story except a few exceptions. As my condition has improved and started again getting on with my life, I also have been spending much less time reading prostatitis forums. Good luck guys, keep the fight, I will update the forum once in a while.
Just a matter of interest Kite Surfer. Did your cultures urine post massage and semen culture correspond each other (i.e. culturing the same pathogen in both ?)
I know myself and read countless of studies that per rectum and VB3 culture is an essential diagnostic tool, (but per rectum is good for cancer diagnosis - but this is out of question given low PSA and younger age (i am 31).
Semen as a dignostic tool is quite suffifient if clear, though some urologist say you should do the Stanley Mayers test too as essential diagnosis. So did your cultures corresponded with each other or there were differences ??
I remember you were also on a long atb course..I myself was on 5 weeks of trimethoprim and taking atbs if semen is clear seems not very logical (though i have abdominal tension, light pain when sitting unpleasant tension periodically. So I wonder what should i do next.
Thank you.